Leo is on great form today (writing this after midnight so talking about Wednesday) and even ate a whole bowl of spaghetti bolognese this afternoon. Doctors are happy with his progress on the infection front so it should be okay for him to have his IVA chemo starting Friday for 48 hours as per the protocol. Good news.
PJ and I are so proud of Leo and never a day goes by, when even as he throws tantrums and kicks out sometimes, that we don't thank the powers that be for him being with us. We're so privileged that Leo is our son and even though we're heading along this adventurous path with him right now, it's because Leo is who he is, full of spirit, that he's bringing us along with him each and every day. People use the phrase a lot about their children being fighters and we truly feel Leo is one of life's fighters. Proud is probably an understatement of how PJ and I feel about him.
Talking of how spirited he is, we were in a bank today where some workmen were making some noise. Leo responded by saying to one of them;
Excuse me, I am trying to sleep. Please could you keep the noise down?
Lots of laughter ensued and as a result, every time the workman's drill started, Leo did the same thing over and over! When we actually left the bank, not only was the workman able to get on with his work undisturbed, but I like to think he'd brightened a few people's days with his cheeky spirit!
He even wanted to buy chocolates for the nurses today. Picked them out himself and then gave them to the nurses on the ward on our return to the hospital with the phrase;
Don't eat them all yourself!
Cheeky, spirited, beautiful and yes, we're very proud.
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Helen,
ReplyDeleteYou are an amazing mother. I am so proud of you and how strong you are. You & PJ are taking such good care of Leo, and I can only send my love and good wishes. I don't think you'll recognize my name, I am Joy Kross's younger sister. Joy forwarded the blog site for me to follow. I had some surgery myself this month so have just recently been able to catch up on the progress. You have been in my thoughts and prayers since you were born, and now more than ever as you trudge this trying journey with your beautiful son. If there is anything I can do for you, or obviously, Leo, let me know. My love for you and your son go far beyond any borders or boundries. Love, Kathy Garza