Tuesday, November 25, 2008

They All Want to Kiss Me!!!

Leo has had a slightly better day in terms of eating and whilst it hurts me to say he cannot drink milk unless he eats his breakfast, it's for his own good!

Having said all that, when I collected him from school this evening he did say his favourite part of the afternoon was eating his lunch of bread and jam, so we're making headway.

He also played properly with some other children for the first time, instead of just relying upon the teachers who are lovely. I asked him whether he plays with the girls as well as the boys and he answered..'urgh, I can't play with girls Mummy, they all want to kiss me!' Get him!! Thinks all the girls like him! Cheeky so-and-so.

Have had to rearrange our oncology consultant's meeting tomorrow as PJ has another job interview and so perhaps we'll touch base next week. We also see Leo's eye docs again on Thursday afternoon.

Not long now until my cousins put themselves through miles of mud, cold weather, perhaps even rain knowing the weather here in the UK in the GRIM Challenge on Sunday Dec 8th. They're raising money for our forthcoming trip to Disneyland in Paris as well as any future treatment Leo will need, plus a legacy fund for Clic Sargent and the Paediatric Oncology Ward at the Bristol Children's Hospital. During the past two weeks of not knowing whether Leo's already relapsed, we took the step to book a trip to Disneyland as the last two weeks have really emphasised that we never know what's around the corner.

So on Dec 15th, we are taking Leo on a lovely trip to Disneyland and he's one happy chap.

After all the medicines, chemotherapy, radiotherapy, hospital visits, general anaesthetics (about 40), central lines, central line dressing changes, weekly blood tests, five blood transfusions, we think the trip will be an awesome way to celebrate life together. Hopping, skipping and jumping down Main Street Disneyland is something we're all looking forward to and seeing Leo's excited, happy, smiling face when he finally sees Mickey Mouse and Buzz Lightyear for real will be a dream come true.

It's an old cliche but the words thank you are not enough; thanks to all of you who have contributed to the fund. Words can literally not express how thankful we are, but let me assure you that the photos of Leo smiling away in Disney will easily illustrate the difference you've made to our son's life. They'll be here on the blog as soon as we return as a way of saing thanks.

Monday, November 24, 2008

Keep On Keeping On

Another week has past and things are starting to settle down. Leo's temperature has finally become normal on a consistent basis so that's good. His eating has slightly improved in that he is actually eating little bits and pieces from time to time. His cold is still lingering but then it is the season for it. And he's been to school a few times and enjoyed it each time. The eyelid droop is no worse so that's promising and may point to 'just' radiotherapy late effects as opposed to a relapse, but with more tests this week, we will keep on keeping just about everything crossed.