So the only thing the doc wanted to talk to us about what to remind us to get the seasonal and swine flu jabs this winter!! Urgh....why leave a message saying he needs to talk to us, the week after Leo's MRI scan, when it's a simple thing like flu jab reminders?? Plus we were seeing him in clinic today anyway.
Oh well - the great news is Leo's chest x-ray was clear again today, so we can breathe again for another 2 months. We'll be celebrating one year off treatment in only 6 weeks time, and so the great news again is the MRI scans decrease to every 4 months now. Chest x-rays remain at every 2 months for the next year at least.
Haven't said it for a while but thank you for all your support - yes, diagnosis and treatment was pretty awful but we're still finding 'normal' life a little tricky, living with the fear of what may happen...but things are improving and having your support really helps.
Wednesday, September 23, 2009
Monday, September 21, 2009
Waiting Game
Leo's scan seems to be okay but his oncologist wants to speak with us according to his voicemail - we're positive it's not to do with the scan as if there was anything obvious on the MRI, then Leo would have been in the hospital like a shot as this type of cancer is so fast growing and aggressive that the doctors would not risk waiting a few days before starting palliative care.
We're seeing his oncologist on Wednesday for follow-up and another chest x-ray. The x-rays seem to come around so quickly but then I guess every two months is quick!
Wonder if there may be something up with the blood tests Leo had done whilst he was under general anaesthetic for his MRI nine days ago. The usual tests were done such as FBC (full blood count), CRP (C-reative protein for inflammation) and also for coeliac disease and thyroid function. Perhaps his thyroid has stopped or slowed down as a result of the chemo - not very common but does happen and may explain the slow down in growth / appetite. Having said that, since we saw the dietician a few weeks ago, we've implemented a really successful new regime for Leo and his eating. The result? He's eating more regularly and eating far more range of food which is very exciting!! Seeing him eating blueberries and salmon sure does bring a smile to my face.
School is going well and Leo is still enjoying things. He has a few new friends including Izzy; his teacher tells me they were holding hands today...aaaahhhh!
Anyway, only another 36 hours until we know what the doctor wants to speak with us about...
We're seeing his oncologist on Wednesday for follow-up and another chest x-ray. The x-rays seem to come around so quickly but then I guess every two months is quick!
Wonder if there may be something up with the blood tests Leo had done whilst he was under general anaesthetic for his MRI nine days ago. The usual tests were done such as FBC (full blood count), CRP (C-reative protein for inflammation) and also for coeliac disease and thyroid function. Perhaps his thyroid has stopped or slowed down as a result of the chemo - not very common but does happen and may explain the slow down in growth / appetite. Having said that, since we saw the dietician a few weeks ago, we've implemented a really successful new regime for Leo and his eating. The result? He's eating more regularly and eating far more range of food which is very exciting!! Seeing him eating blueberries and salmon sure does bring a smile to my face.
School is going well and Leo is still enjoying things. He has a few new friends including Izzy; his teacher tells me they were holding hands today...aaaahhhh!
Anyway, only another 36 hours until we know what the doctor wants to speak with us about...
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