Wednesday, February 18, 2009

Anyone Have a Time Transporter Handy?

So what we'd like, if you happen to know anyone who can help, is a time transporter...can you help? KnNow anyone with a spare Doctor Who portal stuckgatheirng dust in their shed? We just want to bounce life forward to next week. No big deal. I know we shouldn't go wishing our lives away as every day is precious, especially these days, but we would kind of like to skip the next few days and get to Monday as soon as possible.

Reason being?

Leo had an MRI scan yesterday and there were no oncologists round to read the scan pictures before we left the ward. His oncologist is away on holiday and so not back until Monday and although we're booked to see him anyway next Wednesday, its hard knowing that not 3 miles from where I now sit, there are pictures what's going on inside Leo's head, which can tell us what's in store for us all over the next 3 months until the next scan!

Leo is also poorly again with a high temperature and streaming nose. The anaesthetists were close to cancelling his scan yesterday but given he has to have the scans every 3 months anyway, they felt it best to give him the anaesthetic, knowing there were increased risks involved.

Plus Leo is telling us his head hurts so Calpol is going down a treat right now. Whilst he was under the general anaesthetic yesterday, the doctors took more swabs of his throat, nose and eye again to see if the strep infection he had two weeks ago is back already or never left in the first place! It will be a shame as it's horrid to see him feeling so unlike his normal cheerful, energetic self. It also makes it difficult again to ensure any infection does not track back into his head where the left-over tumour is from after his cancer treatment. If it gets there and even into the tumour, Leo could get very sick so we feel like we need to keep on top of it constantly.

I know the old saying that 'no news is good news' but without Leo's oncologist in the actual hospital this week, we kind of have this fear, even if it is an irrational fear, that no-one is on top of Leo's scan results. Wouldn't it be awful if something was wrong and no-one knew about it until his doctor was back next week? I guess it has illustrated how diligent his oncologist is as he always knows when Leo has a scan or needs a test result and he's always there to see us and reassure us or just answer our questions, even if they're inane and he's answered them a million times before. Even if he is the most direct doctor who sugar-coats nothing for us, we'd rather have the info and all the details than have no knowledge at all...which is where we are right now!

Fingers crossed, sleeping tablets invested in and keeping away from anything which will increase our stress levels this week...

Tomorrow's another day but we kind of wish it was Monday already...if you know what I mean!

Sunday, February 15, 2009

Waiting for Tomorrow

Tomorrow's sees Leo's next MRI scan, again under another general anaesthetic. It'll be the second after his treatment ended and as his oncologist is on holiday this week, we'll have to harass another doctor to look at the pictures tomorrow so as we won't have to wait until his doc returns.

He is still complaining about a pain in his head, has not wanted to eat for the last two days and has a low-grade temperature again of between 37.8 and 38 degrees. He also is not interested in going out anywhere regardless of how much we tempt him.

So whilst he was very good about taking the week's course of antibiotics for the confirmed strep infection he had in his eye and throat, perhaps he has not had enough drugs to kill the bug and it's on its way back? Who knows? Could it be something else instead? Again, who knows?

Tomorrow's another day and Leo's just gone to bed knowing he's having 'wobbly juice' again so fingers crossed all goes well with the anaesthetic and everything else...