Monday, June 30, 2008

A Quiet-ish Day

A quiet-ish day because Leo has had a low-grade temperature but also because he decided to 'kick-off' and have a little biting fit this morning. As a result, we said he was not allowed out today and also not allowed any treats. He's therefore had a day of DVDs and playing at Clic House which is not the most suitable place to try to contain him as he does not want to be with anyone else but PJ and I. But we're making some head-way into renting a place and today has meant we can sit down and concentrate on sorting out our housing and benefits, so in a way, it's been a blessing in disguise that we've had to stay home.

Just finished watching Andy Murray on Centre Court at Wimbledon and recognised some of Leo's fighting spirit in the Scot. Nice one, Murray. Keep it coming. Always enjoy a comeback kid going against the odds.

Off to the hospital tomorrow for kidney function test to assess how much his kidney function has been damaged as a result of the chemotherapy. We also have a much-needed appointment with some child therapists to help us in looking after Leo's emotional needs right now. We completely recognise that he's in an alien place in his life right now. Not only does he have doctors and nurses eyeing him up all the time, but we're no longer in Spain, he's not attending King's College which he absolutely loved, he has no friends here which he sees on a regular basis and he has to share one room with his Mum and Dad; now that final one alone is enough to make anyone go crazy!

Wednesday sees another day of family as my brother, his wife and baby Sophie are still here from Dubai, as it's Sophie's Christening on Sunday. Leo cannot wait to see baby Sophie again and as we're not sure if he's allowed to travel as far as a town near Gatwick whilst on treatment, this will be the last time he sees Sophie for a long while and probably until they all come to the UK as I doubt we'll be able to travel to Dubai for a long time. Travel insurance alone is prohibitive for cancer patients and those within five year's of having finished treatment so we'll have to wait and see what the future brings.

Finally, we've had lots of happy emails about the language used by our delightful son yesterday. Glad he's been of service to brighten your day, but you'll understand if we wish for him to refrain from doing this too often! Having said that, just writing bum-head and grumpy-chops raises a smile!

Enjoy...

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