Thursday, August 14, 2008

The Advantage of Having Cancer is.....

The upside to having cancer is you get spoilt rotten! And for parents of a child with cancer, the upside is we get to see family and friends more often than we normally would. Leo has had a better day at the hospital...still a little grumpy after the GA but more because the anaesthetist woke him from his slumber, as opposed to the GA itself, I think. And then he was able to play at home with my cousin and her partner for absolutely ages, with whom we all get along with and although we did get to see them in Spain back in February, Nicola and Debs have been so supportive since this whole adventure started.

We all needed support this evening (some more than others!) as there's a huge trampoline in the garden which Leo insisted we all had to go on with cries of 'show us what you've got!!', and much fun was had by all. Photos to follow.... I have to say that Nicola and Debs clearly practice their trampolining skills as they were pretty good and totally outshone both PJ and I (although PJ would probably not agree with that statement, being competitive as he is!!)

So it's Friday tomorrow and so now it's only five weeks to go with Leo's radiotherapy. To our surprise, this first week of Leo's radiotherapy has gone quite quickly despite the immense stress, and I think part of that is because we've had Martina here, followed by my cousin, Nicola and Debs, her partner. Leo has impressed us in the mornings and has coped pretty well with not having anything to eat until after 2pm, sometimes 3pm and I reckon that by the end of next week, we'll have it all down to a fine art in terms of the GA and post-sleep recovery processes!

We popped into the apartment very near the Royal Marsden which we'll be moving to shortly and it will be a fantastic base for us during the latter part of this section of the protocol at the Marsden. Whilst Leo still has a lot of energy, it's just fabulous that he's able to run about, play and make good use of the swing, amazing garden and the massive trampoline here at this house and then once he starts to get very tired, which is inevitable with radiotherapy to the brain and head, the apartment will be great. We're very fortunate to have been able to stay here at Donna's home (another cousin) whilst she's on holiday and also very fortunate to have a wide and growing circle of support from all over the place.

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