You'd think we'd have learned by now that no plans stick...make plans to meet friends or family and you can pretty much ensure it won't happen. We've planned to see Ian and Trina countless times and to no avail...something related to Leo / cancer / treatment / illness just keeps stopping us. Urgh...nothing more frustrating. Our apologies Ian and Trina; we will get together soon...shall we perhaps get a date in the diary for 2011? You never know; we may be able to keep to a date then?
At least there's a slight upside to us having to rearrange plans yet again...we're back in Bristol after managing to secure time tomorrow and Sunday for Leo to have his anti-biotics on the ward at the Bristol Children's Hospital. He has a line infection and this is by far the most risky so far. All the other ones have been staph infections of his skin where the Hickmann goes into his chest. However, this time the infection is a staph one again BUT this time, it's in the actual line itself.
Leo's been on anti-biotics since Monday and when they took blood again to see if anything grew on Wednesday, staph grew within 12 hours and so is quite full on. Plus he'll be neutropenic at some stage over the next few days and as such, his body will have no resistance against an infection except for the anti-biotics. So we've got everything crossed that the anti-biotics so their thing. The plan is to take blood to grow cultures again on Tuesday and if they do grow again, the line will definitely come out as after over a week's drugs, the infection should be gone. If it's not, Leo'd get very sick and indeed one of the main reasons children don't survive their initial treatment is due to infection.
Tomorrow's a new a day...and at least we're in our own house, back in Bristol and we can push forward to form some sort of routine and order to our lives.
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