Tuesday, September 02, 2008

Over Halfway There

So just over 50% down, and less than 50% to go for Leo's radiotherapy and he's doing great. I am not sure that PJ and I would be coping as well as he is. He's obviously getting all of our attention, 100% of the time which helps but then we also need to remember that he is only 3 and a half, and so needs as much emotional and physical support as we can possibly give. This week has seen Leo get more tired more often and he will not walk anywhere and so PJ and my arms are getting very strong indeed. Leo is 15.2 kg (same as when he was diagnosed 4 months ago) and so it's a good work out for us both. We knew he'd start getting tired due to the daily radiotherapy to his head and brain but also the general anaesthetic and now a large dose of sedative also; actually we'd both set our expectations that he'd be more tired and more dependent upon us before now, which is why we think he's coping pretty well. This excessive tiredness is likely to still happen but gradually over the next few weeks.

Thanks again for your messages and apologies for the delay in responding. Not only are the daily hospital visits very tiring and time consuming, but our phones do not have any reception and we've no internet access at the flat or the hospital!

We're also missing people from Bristol very much as Surrey feels like a world away but we'll soon be back. We appreciate people's lives continue whilst this whole thing is happening to us and yet we really appreciate it when you take time out to say hi and catch up with things, wherever you are in the world, so thanks again.

Tomorrow is a new day...

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