Sunday, November 02, 2008

Patience is a ...

Patience is a virtue or in our world, pain in the backside! I'm terrible when it comes to waiting for things and so when Leo's temperature went to normal (36.8), on it's own i.e. with no paracetamol on Saturday morning, we felt elated, over-joyed and somewhat baffled! It was short-lived though as by 3pm, it had hit 37.9 again, and stayed there or thereabouts until this morning. Again, it was relatively okay this morning before again creeping back up to the right side of 38 degrees.

Now we have to be patient again and see what the next day and night has in store. Leo will have zero immune system at some point very soon and certainly in the next couple of days, which means that the normal rules apply. If the temp hits 38 degrees twice in the space of 30 minutes, or spikes at or over 38.5 degrees, it'll be another few days in hospital and more IV antibiotics. Urgh! Need to have more patience...

Also somewhat impatient at the fact Leo has an MRI booked for 15 days' time and another kidney function test. Having said that, and not sure if I'm repeating myself (again), but it's not this forthcoming MRI which matters. The docs won't compare this one to the last two. They'll wait another 3 months (February) before doing another MRI. They then compare those two for differences i.e. are there any changes / growth in the 'scar tissue' / white stuff that shouldn't be there on a 'normal' / non-cancer scan? I guess it will be simple to see as the cancer has only ever been in one side of his brain and head, and so it's simple, even for us, to see the differences between one side of the scan and the other.

Patience...wish we had more of it!

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