Home Sweet Home

Leo is home this afternoon and with plenty of energy - PJ and I wish we could have some! It's amazing Leo has so much energy and it's a shame we cannot keep up. He was so excited when Ken, Leo's nurse today, told him he could go home and Leo screamed "yes", and punched the air with a Tiger Woods flourish. I love moments like that. It must be horrid to feel semi-okay but have to have been in hospital for 14 days for an infection and then for chemo which made him sick all weekend. Having said that, every time he was sick, he immediately asked for and ate toast!

We tried to settle down to a quiet afternoon but that is pretty difficult in a shared house. It's great to be living here at Clic House, however, now Leo is home from the hospital and needs some quiet time and normality after weeks in hospital, it's actually quite tough to achieve this for him.

Clic House is a fabulous facility managed by an awesome and committed team, and it's a great place. Not just because of all the toys, en-suite bedroom for us to share and the locality to the hospital (about 12 min walk); it's also fabulous being with other families who totally understand what we're all feeling.

Once we have our car on Wednesday afternoon, I am going to try to take Leo out for an hour or two every day so as he's not stuck in the house all day every day, simply waiting for the next time his temp spikes or he needs chemo or his line bungs and plaster changes or bloods need to be taken.

The pictures on this post show Leo as he is today, once we arrived back at Clic House..happy, smiling and overall, in pretty good shape, I'd say! I am amazed that a 3 year old can deal with everything he's dealing with right now.