Sunday Bloody Sunday

Leo has finished his third weekend of IVA chemo so three down, six to go with the six weeks of radiotherapy to start in six weeks.

His haemoglobin is at 7.5 today so he's going to have a blood transfusion which takes about 4 hours and afterwards, he'll be full of energy and have pink lips and cheeks. The blood transfusion is the reason for the title of today's posting, just in case people get offended. My attempt at being clever with using a U2 song title...it is Sunday and Leo's having a blood transfusion. Got to keep ourselves amused!

There's another family who are also living here pretty much permanently, and they have four children with another on the way. The children who stay at Clic whilst Mum or Dad go to the hospital to see their unwell baby, are the perfect age for Leo to play with and try to achieve some sense of normality. Sara, their mum and I have said we'll do some baking this week and some nursery rhymes each day and things like art and crafts to keep them all occupied.

We are particularly keen to keep Leo calm this week whilst his white cell count drops towards day 8 of this cycle (next Saturday) as otherwise he seems to spike a temperature. Of course he loves attention and running around like a crazy monkey but we know it's not good for him which is why we hope doing a few structured things with the other children this week can help keep him on an even keel. Here's hoping!

Thanks again for all your support and best wishes, and also to all of you who have messaged from out of the blue!