This last few weeks has totally reminded us that this adventure is a marathon, not a sprint. How Leo does not get completely mad being in the hospital is testament to how brave he is. Well, he does get angry at times but that's because he wants to do one thing, and we need him to do another..so no different to any other 'normal' three year old really!
Leo had great fun playing with his Big Grandad today even though he's not felt 100% due to the IVA chemo starting yesterday. He's also hooked up to fluids all day for 45 hours from Friday afternoon and so he's restricted from running around and scaring the nurses (like he was yesterday morning).
The way we need to think about things I guess is that this is week 7 and so he has now nearly completed two cycles and just started his third of nine chemo cycles. We're just two weeks away from his MRI and kidney function test. The MRI is vital as it will show how / if the tumour has been affected by the chemo so far. The kidney test allows the docs to see how /if his kidneys have been 'poisoned' by his treatment (poisoned is the word used by his consultant yesterday when he explained the tests!)
It also appears that Leo will need a blood transfusion again tomorrow after his chemo and fluids are done as his haemoglobin are less than 8 which means he's anaemic. Then after his blood, Leo will have lots of energy and will be able to come home to Clic House for a week of calm and relaxation after two weeks in hospital.
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