Hospital-itis

If one could have something called Hospital-itis, then I think all three of us are getting there. Shame really, as we'll be seeing much more of the hospital in the next year and for years to come!

Leo is doing okay. Bored, but okay. Every now and then he holds his right arm in as though it hurts him to leave it or use it. His chest is slightly worse this evening but then I guess we need to give the new IV antibiotics a chance to work before we concern ourselves too much. The doctors and nurses are fab, and they always give us lots of time to ask questions, even if we're asking what may be irrational questions at times.

We met with the Clic Social worker today, Cylla, who is so lovely. We always end up on deep and meaningful conversations about geopolitical issues. I have also had a long chat with a really nice Mum of Seth, a one year old who is poorly right now. She has another baby on the way and her husband is looking after their other three children in between Clic House and the hospital. Luckily they are able to either go to the school at the hospital or the large playroom so they're having lots of fun. I am finally feeling on top of things with Leo that I feel I can listen and help other parents. Even just sitting and holding Seth whilst his mummy nips to the bathroom or get his dinner, all these little elements help all of us on the oncology ward.

A new family came in today and they just had that shell-shocked look on their faces, just as we probably did when this whole adventure started for us in May. You never want to pry or encroach on their space but you really want to give them a big hug and let them know that the doctors and nurses, and all the other people like to Clic play therapists are tremendously kind and able people. You cannot tell them everything will be okay because it's not. It's so not okay but you also want to let the know it's a bumpy ride from here on in but you can get through it.

Tomorrow is another day and I am really hoping his chest looks better, not worse again. Poor Leo. He is being so patient most of the time. We just wish things could be even a slightly bit more normal but they're not and we need to get on with life as it is now.