Leo is still having iv antibiotics for the infection in his chest where the Hickmann line is. He's been okay today. No temperature; just very bored and frustrated with things really. Thankfully milk has been on the menu today, and lots of rice crispies so at least his appetite is coming back.
My feeling is he'll be home to Clic House tomorrow (Tuesday - as I am writing this at just after midnight on Monday night / Tuesday morning), and then the doctors will give us oral antibiotics for him again. Judging by the severe lack of success last time around, we need to learn some new tactics for ensuring he takes his medicine without reverting to him having a nasogastric tube up his nose into his stomach. However, in my mind, I know he'll need one at some point as the antibiotics are horrid..not that I tell him that, of course! We'll see what happens.
Had some lovely cards and emails again today and pleased you're enjoying the updates here. It does help writing as sometimes it clears the mind a little before attempting to sleep.
Anyway, hopefully he will be home tomorrow and then back to the day beds ward for Vincristine on Friday. We should know tomorrow whether the antibiotics via iv are working and if not, then they'll probably make a decision tomorrow as to whether to operate again and put in another.
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