Wednesday, June 04, 2008

New Photos and Leo's Wiggly Worms


Just wanted to explain the new photos...

You'll see I have deliberately left in un-edited pictures which clearly illustrate Leo's Hickmann Line entering his chest and at the end of the line are two little 'wiggly worms'.

PJ and I had a very quick conversation about whether to edit the pics, but we were both in agreement that it's vital we show things as they are.

But it's also important to say that the line does not hurt Leo and he can run around and do most normal things, just like any other active 3 year old. The only things he's not permitted to do until it's removed at the end of his treatment are swimming, playing on bouncy castles, no deep baths or scuba diving (!) and going down slides on his tummy. It cannot get wet due to infection risks and it's vital it does not get pulled out.

He has a 'sleeping bag' for the wiggly worms to sleep in when they're not having a drink (i.e. medicine) or they're not being used to painlessly take blood to check on his white cell count etc. The wigglies also have names...blue-y and yellow-y....as they have little labels at the end of each one so as the doctors and nurses can differentiate between them easily.

Leo got used to his wigglies very quickly and they do not bother him at all!

So hope you enjoy the new photos.

1 comment:

  1. loving the photos and the dashing new haircut - very grown up

    lots of love
    xxxxxxxxx

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